Tuesday, 16 July 2019

Carter's Steam Fair

 At the weekend we enjoyed a family afternoon at Carter's Steam Fair when they visited town for a few days. Carter's is a unique fair with rides that the Carter family have collected and restored originating from the 1890's to the 1960's.
 It did feel like you'd taken a step back in time, from the rides to the music I really felt that there was a sense of going back in history!
On the carousel
One of my favourite things as a child was to go to the fair when one came into a local town. These days I'm not keen on the 'usual' fairs that appear during the holidays but Carter's is not your 'usual' fair and the atmosphere felt completely different!
Each and every ride is beautifully painted just as it may have been all those years ago when it made its' debut, keeping that sense of history and originality.
When we arrived at Carter's Eliot was so excited he couldn't decide which ride to go on first! There were plenty of rides for younger children to enjoy and that are suitable for toddlers. He was able to go on many alone but also gave some a try that he wanted to go on with a grown up! 
There are also a couple of rides that aim to please those that enjoy white knuckle rides including the 'Victory Dive Bomber' which is the only remaining travelling Dive Bomber!

See the Dive Bomber in action?!
As well as rides to enjoy Carter's also have plenty of fairground games to play including 'Hook A Duck' (the traditional fairground game), a coconut shy and even an arcade full of vintage slot machines!
Hooking one of those ducks!
 As well as 'Hook A Duck' Eliot had a go on the 'test your strength' traditional 'Striker' game. There were three sizes to cater for different ages and strengths, giving the opportunity for all to have a go!
Candy floss at eh coconut shy

Entry to Carter's Steam Fair is free, tokens are required to be purchased to go on the rides. These can be purchased online before you visit or at the machines or token booths at the fair. To get the best value it's a good idea to buy online as Carter's give extra ride passes! 
Each token is worth 50p and the number of tokens needed for each ride varies. Most of the toddler rides require four tokens, whilst family or thrill rides require five or six. You also need tokens to play the games too which cost five tokens.
We had such an enjoyable visit to Carter's and certainly recommend a visit for a family afternoon/ evening out. To check if Carters are coming to a town near you have a look at their online tour dates.
They are back at a local town in September and we already have it booked in on the calendar!

*We received ride passes & refreshment vouchers in exchange for our honest views. All opinions are my own!

Thursday, 28 February 2019

Rare Disease Day 2019 - A Little Bit About Tuberous Sclerosis

Today is Rare Disease day across the world which I wrote my first post about last year!

Rare Disease Day aims to raise awareness of rare conditions and how they affect individuals and their families. 1 in 20 people will develop a rare disease in their life so that's why it is important that more people become aware.

50% of rare diseases affect children.

Nola is one of those children. She has Tuberous Sclerosis Complex (TS/TSC) which looking at current figures, affects 1 in 25,000 to 1 in 11,300 people in Europe.

It is present from birth but some individuals do not learn that they have TS until they are adults. Symptoms differ from person to person as does the severity of how it affects them.
Tuberous Sclerosis causes benign tumours in different parts of the body, the most common to be affected are:

The brain, eyes, lungs, heart, kidneys and skin.

If you have them, you are born with the tumours in your brain, heart and eyes (possibly elsewhere but I'm not 100%) in other organs the tumours can develop later on. The good news about tumours in the heart is that they usually shrink as you get older. This has happened in Nola, a second ECG revealed that the rhabdomyomas on her heart had decreased in size.

At present Nola also has tumours in her left eye which fortunately don't affect her vision at the moment. She also has multiple growths in and on her brain, these unfortunately do affect her and she has epilepsy which on the whole has been controlled by medication. Unfortunately she has recently relapsed in a rare type of seizure called infantile spasms.

Some people with TS lead a next to 'normal' life whilst others are severely affected and need life long care.
TS is caused by mutations in either the TSC1 or TSC2 gene which play a part in determining cell growth. The mutations cause uncontrolled growth which results in multiple tumours in/on the body.

There are treatments for the various areas that can be affected by TS, sadly they do not always work for every patient.

So there are a few facts about Tuberous Sclerosis on Rare Disease Day 2019.

Thank you so much for stopping by! I appreciate comments and read all of them!